Georgian First Lady hosts Brussels conference on rare diseases
Georgia, Tbilisi, March 1 / Trend N. Kirtzkhalia /
A conference and charity dinner dedicated to the international day of rare diseases that was marked on February 29 were held in Brussels at the initiative of EURORDIS chaired by EU President Herman Van Rompuy and under the patronage of the Georgian First Lady Sandra Roelofs.
The money received from the dinner will be spent on patients with rare diseases and to further research in this area.
Two years ago Sandra Roelofs formed an alliance to help patients with rare diseases such as haemophilia, Down syndrome, thalassemia, phenylketonuria, cystic fibrosis, autism and others within the SOCO fund.
The alliance of SOCO funds aims to unite and strengthen the organisations and groups operating in this area in Georgia.
In early March, Mrs Roelofs plans to meet with representatives of the European health bodies including the Academy of Paediatrics in Brussels.